We're here for a bit!

Well I swear this kid of mine is changing by the day. He seems to be getting plumper as we speak. Tonight he'll actually be on "full feeds" which is awesome. They keep reducing his IV nutrition (TPN & Intralipids) and it looks like he'll have his PICC line removed in a couple of days if he keeps up with all the good work. A PICC is a peripherally inserted central catheter. So basically an IV that is inserted for long term use and is threaded close to the heart so the meds are mixing with a higher blood volume. His was inserted into a vein on his head and threaded along and actually its the charge nurses that tend to insert them here. My usual routine is to get to the hospital around noon or one and stay till just before shift change at 7pm. So today I got to snuggle again for a couple of hours. Since his CPAP was rubbing his nose a bit too much they wanted to give his nose a break so we got to try again without the CPAP. He actually did really quite well and mellowed out in my arms. He does fluctuate a bit in color from pale to pink but I guess that his vessels in his lungs will continue to spasm for awhile yet. But they did do a blood gas (blood work that makes sure his body is compensating properly and not making his blood too acidic or basic) at about 630pm and he was doing well. Then I just called again at 10pm and he was still doing ok without the CPAP and they were going to repeat another blood gas just to make sure. I ended up asking one of the charge nurses, who has written her masters on CDH, what her best guess would be in regards to us getting home. Her answer was 6-8 weeks. So we still have a bit of a while to call this southern part of the province home. iIn some respects I was surprised and others i wasn't. I guess I was a tad hopefull that we'd maybe progress out of here a little quicker. However, its nice to have the reality now then down the road as I can get my head wrapped around it now rather than be hopefull all along and get disappointed. So bonus for having accomodation till the end of August. Then I may just have to figure something out for September. Well I got my butt out and went for a walk in Central Park, a 90 hectare park within a block of the apartment. I put on a good stride for about an hour and man does this bod feel it! Geeze I guess it'll take some time to get back to the ol' bod I had before! LOL K as usual I go picture crazy daily! I think I'm at 370 odd pics so far. LOL I know ridiculous but fun! Enjoy the little video clip Cheers Julie