Born July 8th, 2009 @ 1041 & May 25, 2012 @ 2305; Sept 4, 2015 @ 2250
Tuesday, July 21, 2009
Ready for a space shuttle mission!
Well Mr Alistair is making more positive moves in the right direction but the poor little guy looks like he should have jumped on the last shuttle that headed out to space! His contraption looks more invasive then the past stuff but it really isn't. This "CPAP" machine is a step away from having to have any respiratory support. The last machine he was on was a ventilator and with that he had to have a tube down his throat into his lungs and many factors were controlled. However, with the CPAP it just uses positive airway pressure with a sealed nasal prong to help reduce Alistair's work of breathing and improve gas exchange. I thinking he'll be on it for a week or so till he graduates from it but we will see. He still has some indrawing with it which just means he still has to work a bit to breath even with the CPAP. But anyhow doesn't he just look cute! Its so nice that he's on CPAP as I have been able to hold him a lot more. Yesterday I held him for 4 hours and it was wonderful. It's also great as I get to hear his little muffled cries, he gets to suck like crazy on his soother, and he even took a ml of my milk from a bottle! At the moment they are giving the majority of his milk by a tube that is now through his mouth into his stomach. Yesterday he was on 3ml every 3 hours and he didn't have any problem with it. I guess for his age they want to eventually get him up to about 50ml every 3 hours. He is also off all meds except TPN and Intralipid (basically liquid food). So we'll keep crossing our fingers that he keeps moving along in the right direction.
Cheers Julie
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Oh Julie what a handsome guy, love you thinking of you all. Love you
ReplyDeleteKara
Love the pictures Julie!! The pic of you holding him brought tears to my eyes!! It's beautiful! I love reading about Alistair's progress, it's one of the highlights of my day. Strength and love to you and your little family!
ReplyDeleteTrisha Neill
Great updates, Julie. Every new blog has something positive report. I'm so happy that you've finally got to give Alistair some snuggles. All that human touch will take him far!
ReplyDeleteLove,Kiersten
Alister was right on schedule to celebrate the 40th ann. of the landing on the moon ( he certainly had the space helmet look)
ReplyDeleteI just feel he is going to make a significant difference in this crazy world of ours. in his own time.
And yes that first real cuddle must have have been so wonderful. Little hugs to your handsome boy. much love auntie Rosi
Hey Juls,
ReplyDeleteThis is all good news and every day a bit of progress. He certainly is a cute little guy. The pics are great. You look great too. Can't wait till we get to meet him in person. Lots of love and positive thoughts and prayers from us at home.
Val