Wednesday, November 11, 2009

More seizures....

Yep unfortunately Alistair had another cluster of seizures on Monday morning. We were on the floor playing together and all of a sudden his face and neck got tight and he grunted away for 5 sec and then it was over and he smiled at me like nothing happened. At first I thought this can wait till Friday when we see our pediatrician but unfortunately they just kept coming. In aproximately 4 hours he had fifteen 5-10 sec seizures. They didn't seem nearly as intense as the last cluster at the end of October. He would just grunt and it seemed more to just affect his head and face rather than the whole curving of the body. Plus he didn't cry out in pain like the last time....... So back to Emergency we went. I have to say ones gotta love the triage system as the waiting room was packed but we were escorted in pretty near immediately. They didn't even want us in the waiting room. Before we knew it we were back up in our well known Peds Unit. It was nice to see some famliar faces for consistency. Dr Hay, the pediatrician on call, took Alistair on. Wow was she thorough. She had just been to Vancouver to a conference on seizures in children. So she was ordering tests the lab had never heard of before. So at least I felt Alistair was in good hands. She put him on phenobarb an aniconvulsant and Vitamin B6 as I guess sometimes these little guys can not metabolize it and it could be a cause for seizures. He got a hefty dose of 70mg per kg. I was warned he mat get drowsy. But of course Alistair has to do the opposite of all expectations...he was one active little hyper harriety. As for the tests...so far we just know the regular blood work is normal. He had another EEG and we unforuntately are at the stage we need to go for a CT scan. En route to the hosptial I called my "life line" and talked to some buds in Emerg in FSJ. I got to chat with Christy about some meds, tests, and just for some general support. Then Dr. Mackey was wonderful and chatted with me and answered a few questions in regards to the CT scanning. Its just wonderful to have that level of support when one is emotional and going in blind regarding all this. To have that support when i was feeling pretty darn unstable and getting some basic answers just did me some good. So if you read this i thank you guys for that! Anyhow... Dr Hay discharged us today with several pending tests such as a CT. She just wanted us out of the hospital environment as there is some H1N1 and influenza about in the hospital. So nice to be back home in our little safe zone. As for the H1N1 I went and got my dose yesterday. Frick thats a painful little injection. Feels like someone knuckled me right in the deltoid. But hey ...nice to know I will have that protection for Alistair. Anyhow.....we're still heading down to Vancouver on the 19th. I've decided that Mom would be great to have along so she's going to be come for support. I decided I don't need to be any wonderwoman at this point in the game. Just carting Alistair and all my stuff around could be a lot easier with Mom there. It's just so nice that we have these appointments all lined up so close to Alistair having this most recent episode of seizures. Hopefully we get some answers.....and hopefully it is a very basic issue....Well this mama has felt like the rollercoaster was flying down hill but were starting to normalize and chugging back up to a nicer view.

The little man is vocalizing away here so I had better go feed Mr Milkface!
Cheers Julie

5 comments:

  1. Wow Julie! You are one strong woman! If little Mr. Milface was born with half your strength, he'll come through all this with flying colors. I'm thinking of you guys and hope I get a chance to see you and meet Alistair when we're in PG for Christmas!

    Christine

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  2. Know Julie that I am thinking and praying for you every day. auntie rosi

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  3. Julie, just thought I would catch up on how things were going. Alistair's pictures are gorgeous, he is getting so big. Best of luck with your trip to Vancouver.
    Terry

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  4. Thinking of you Julie and Alistair... he is a trooper, isn't he? I hope things turn out ok! Get rest and be strong! I got the shot too, it is a tough one on the muscles! Warm showers help a bit. :)
    hugs,
    katia

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  5. You said it girl. Those moms, gotta love em'. I'm glad you'll have some back up for your trip, and someone just to hug you when you need one. I've been getting lots of those these days. My back is all seized up and my mom is happy to massage it and allowing me to get lots of rest. Little Milkface will realize too one day what a great mom you have been to him! keep up the smiles, you'll get through it! lots of love

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